Comments on: MS and Provigil: Julie’s Low Dose Naltrexone (LDN) Journal http://www.provigil-rx.info/2009/04/25/ms-and-provigil-julies-low-dose-naltrexone-ldn-journal/ The Ultimate Provigil/Modafinil Information Resource - Aggregated & Updated Daily Fri, 20 Nov 2009 09:12:15 +0000 http://wordpress.org/?v=2.8.5 hourly 1 By: Elizabeth Webb http://www.provigil-rx.info/2009/04/25/ms-and-provigil-julies-low-dose-naltrexone-ldn-journal/comment-page-1/#comment-152 Elizabeth Webb Tue, 08 Sep 2009 22:00:18 +0000 http://www.provigil-rx.info/?p=272#comment-152 So, Did you find a good compounding pharmacy in the Conroe area that knows how to compound this correctly? I called one in the Woodlands that says they do compound LDN- and i asked them for the name of the doctor. They gave me the name of a Wellness Group in the Woodlands. I called and they want thousands of $ and you have to go through many many tests....more of an holistic approach to your overall health...when all i really need is a new doc who will write script... i have called 17 neurologists so far, and no luck finding one who will prescribes LDN... I have taken LDN for 2 years and quite to my surprise am significantly better for it. I have had MS since 1984- did the copaxone, rebif but was beyond relapse remitting when i started so they didnt do much good. I did like provigil, though, and wouldnt mind taking that again too. I am convinced that LDN does "something"--not a 'cure' but certainly has improved my life...rarely use a cane anymore - and lots of my sensory symptoms are gone....if i get really tired, I feel like I have MS again, but I took LDN at my father's insistence- he had read about it and I never expected it to do anything. But a few weeks into it i started being able to do alot of things I hadnt done in YEARS....walking without cane. Standing up easily...walking without touching walls...balance was better, vision was better and most of those weird sensory (belt, numbness, spasticity,to name a few ) were GREATLY diminished... When I run out, as I just have....i tend to regress pretty quick...so in a mad dash to find a compliant doctor. Moved here in February and my supply just ran out.... I am trying to navigate your blogs, but having a little trouble...hoping you are doing well and interested to hear your opinion after several months...I stick to 3mg..i tried 4.5 but was not noticing any benefit..just a lot more in the dream category. 3 is good..for me. Good luck to you, and any direction you might be inclined as to where to compound and who best to try to get an appt with. would be most greatly appreciated. thanks elizaBeth So, Did you find a good compounding pharmacy in the Conroe area that knows how to compound this correctly? I called one in the Woodlands that says they do compound LDN- and i asked them for the name of the doctor. They gave me the name of a Wellness Group in the Woodlands. I called and they want thousands of $ and you have to go through many many tests….more of an holistic approach to your overall health…when all i really need is a new doc who will write script… i have called 17 neurologists so far, and no luck finding one who will prescribes LDN…

I have taken LDN for 2 years and quite to my surprise am significantly better for it. I have had MS since 1984- did the copaxone, rebif but was beyond relapse remitting when i started so they didnt do much good. I did like provigil, though, and wouldnt mind taking that again too.

I am convinced that LDN does “something”–not a ‘cure’ but certainly has improved my life…rarely use a cane anymore – and lots of my sensory symptoms are gone….if i get really tired, I feel like I have MS again, but I took LDN at my father’s insistence- he had read about it and I never expected it to do anything. But a few weeks into it i started being able to do alot of things I hadnt done in YEARS….walking without cane. Standing up easily…walking without touching walls…balance was better, vision was better and most of those weird sensory (belt, numbness, spasticity,to name a few ) were GREATLY diminished…

When I run out, as I just have….i tend to regress pretty quick…so in a mad dash to find a compliant doctor.
Moved here in February and my supply just ran out….

I am trying to navigate your blogs, but having a little trouble…hoping you are doing well and interested to hear your opinion after several months…I stick to 3mg..i tried 4.5 but was not noticing any benefit..just a lot more in the dream category. 3 is good..for me.

Good luck to you, and any direction you might be inclined as to where to compound and who best to try to get an appt with. would be most greatly appreciated.

thanks
elizaBeth

]]>